Charitable Trust

Nau mai haere mai e te whānau me nga hoa.
A very warm welcome to our website

We understand that a diagnosis of complex regional pain syndrome is a scary one. If you, like the majority of us, did a quick search on the web after leaving the doctor’s office, chances are you found some horror stories about CRPS.

It is our mission to be aware of the realities of CRPS but to do our best to be here as a positive force to support you and your family through this time.

Our story

The early days

We began as four individuals with CRPS in separate regions of New Zealand. As there was a lack of information regarding New Zealand-specific advice, and no national support group that connected all of us, we joined forces to create an online support group, Kiwi CRPS.

Over time other people began applying to join the support group. One of those people was running an existing separate group for parents of children diagnosed with CRPS. Adding her to our Kiwi CRPS family expanded our support groups, and thus added the parents group. 

Kiwi CRPS had its first gathering in 2013. It was during this weekend that we spoke about what it was we personally needed from a support group, and as a support group what more we could be offering. From this the charity was born. 

The second important step to come of this gathering was seeing the connections made between our children and partners. We realised how vital it is for the families involved in the day to day caring of those with CRPS to also receive support.


Our future

What we do

Support groups


Connect with us

In addition to our private Facebook support groups, we have a public page and are also on Instagram. Through these channels we aim to raise awareness of complex regional pain syndrome and share the realities but also, importantly, the positive stories of those living with CRPS. Follow us and be part of the conversations.

Colour The World Orange

Below are photos shared with Kiwi CRPS taken from around New Zealand for Colour The World Orange, 6 November 2023.