Kiwi CRPS
Charitable Trust

Nau mai haere mai e te whānau me nga hoa.
A very warm welcome to our website
.

We understand that a diagnosis of complex regional pain syndrome is a scary one. If you, like the majority of us, did a quick search on the web after leaving the doctor’s office, chances are you found some horror stories about CRPS.

It is our mission to be aware of the realities of CRPS but to do our best to be here as a positive force to support you and your family through this time.

Our story

The early days

We began as four individuals with CRPS in separate regions of New Zealand. As there was a lack of information regarding New Zealand-specific advice, and no national support group that connected all of us, we joined forces to create an online support group, Kiwi CRPS.

Over time other people began applying to join the support group. One of those people was running an existing separate group for parents of children diagnosed with CRPS. Adding her to our Kiwi CRPS family expanded our support groups, and thus added the parents group. 

Kiwi CRPS had its first gathering in 2013. It was during this weekend that we spoke about what it was we personally needed from a support group, and as a support group what more we could be offering. From this the charity was born. 

The second important step to come of this gathering was seeing the connections made between our children and partners. We realised how vital it is for the families involved in the day to day caring of those with CRPS to also receive support.

Today

Our future

What we do

Support groups

Mental health

Unfortunately with CRPS our main symptom is, of course, pain. This makes every little thing you do in your life just that much more difficult. However, we understand that taking care of your mental health can be as important as dealing with the pain, and is a vital part of getting through each day. 

​As a support group there is little we can do, aside from advice, to help the physical aspects of CRPS, and while we strive to see the positives in life, we are here to support you when times are tough. 

​The support group members are not health care professionals. 

​If you are experiencing depression or anxiety we will do our best to support you. This could mean making sure a senior member in your area pops by to have a cup of tea either in person or online, or directing you to people and organisations who are more qualified to help. 

Five ways to wellbeing

Connect with us

In addition to our private Facebook support groups, we have a public page and are also on Instagram. Through these channels we aim to raise awareness of complex regional pain syndrome and share the realities but also, importantly, the positive stories of those living with CRPS. Follow us and be part of the conversations.

Color The World Orange

Below are photos shared with Kiwi CRPS taken from around New Zealand for Color The World Orange, 6 November 2023.

  • Kiwi CRPS people beside the Hastings Clock Tower lit up orange for Color The World Orange day, 6 November 2023
  • A staff member in the Greymouth Ministry of Social Development wearing orange for Color The World Orange day, 6 November 2023
  • On board the Wellington Cable Car as the tunnel is lit up orange for Color The World Orange day, 6 November 2023
  • On board the Wellington Cable Car as the tunnel is lit up orange for Color The World Orange day, 6 November 2023
  • Kiwi CRPS people beside the Hastings Clock Tower lit up orange for Color The World Orange day, 6 November 2023
  • Jane Sullivan of Timaru off to work wearing orange for Color The World Orange day, 6 November 2023
  • The partner of someone with CRPS wearing orange and holding orange flowers for Color The World Orange day, 6 November 2023
  • Staff at Poutini Waiora Greymouth receiving a CRPS awareness cake baked by Sharon Smith for Color The World Orange day, 6 November 2023
  • Kiwi CRPS people beside the Hastings Clock Tower lit up orange for Color The World Orange day, 6 November 2023
  • The Michael Fowler Centre lit up orange for Color The World Orange day, 6 November 2023
  • The knitting group In Stitches Greymouth wearing orange for Color The World Orange day, 6 November 2023
  • An orange cake decorated with the words CRPS awareness 2023, baked by Sharon Smith for Color The Word Orange day, 6 November 2023
  • Eden Park lit up orange for Color The World Orange day, 6 November 2023
  • Orange flowers arranged in a vase
  • The Wellington Cable Car tunnel is lit up orange for Color The World Orange day, 6 November 2023
  • The partner of a Kiwi CRPS board member wearing orange, and their dog too, for Color The World Orange day, 6 November 2023
  • The partner of a Kiwi CRPS board member wearing orange for Color The World Orange day, 6 November 2023
  • Kiwi CRPS people beside the Hastings Clock Tower lit up orange for Color The World Orange day, 6 November 2023